Support Directory

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Asking for help after the death of a child is not an admission of weakness or failure. There is lots of support available within our community. Please do not hesitate to reach out for help

 

Download the Support Directory Here – TabithsTrustSupportDirectory04.17

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 Pregnancy Support, Pregnancy Loss, Stillbirth, and Neonatal Death Support (Local & UK)


Kicks Count – http://www.kickscount.org.uk/

Kicks Count is a UK registered charity that aims to empower mums to be with knowledge and confidence throughout their pregnancy

 

Child Death Helpline – http://childdeathhelpline.org.uk/

Telephone: 0800 282986

Mon-Fri 10:00-13:00, Weds only 13:00-16:00, Every day 19:00-22:00

Helpline support for anyone affected by the death of a child, irrespective of the age of the child, the relationship, or the length of time since the death. Provided by Great Ormond Street and Royal Liverpool Children’s Hospital

 

 

SANDS Stillbirth and Neonatal Death – https://www.uk-sands.org/

Helpline 020 7436 5881 helpline(at)uk-sands.org

Mon – Fri 09:30 – 17:30, Tues and Thurs Evenings 18:00 -22:00

“SANDS is an organisation which can offer you support when your baby dies during pregnancy or after birth”

 

The Miscarriage Association – http://www.miscarriageassociation.org.uk/

Helpline: 01924 200799

Mon-Fri 09:00 -16:00

“Miscarriage can be a very unhappy and frightening and lonely experience. If miscarriage, ectopic pregnancy, or molar pregnancy has affected you, we hope you will find here the information and support that you need to help you through”

 

Antenatal Results and Choices (ARC) – www.arc-uk.org/for-parents

“Need help? We’re here for you, your partner and family if you must make a difficult decision about continuing or ending your pregnancy. (and more regarding results of tests)”

 

Bliss – http://www.bliss.org.uk/Pages/Category/coping-with-loss

“Watching your baby fight for life can be traumatic and all parents worry that their baby may not win the battle. The thought of any baby dying is tragic, and it seems particularly cruel when the baby is so young. Support line available”

 

Tommy’s – www.tommys.org

“Tommy’s funds research into pregnancy problems and provides information to parents. We believe it is unacceptable that one in four women lose a baby during pregnancy and birth”

 

The Ectopic Pregnancy Trust – http://www.ectopic.org.uk/

“Supporting people who have experienced an early pregnancy complication and the health care professionals who care for them”

 

TAMBA Bereavement Support Group – https://www.tamba.org.uk

Helpline: 08001380509

“Supporting families who have lost one or more children from a multiple birth” Part of the Twins and Multiple Birth Association – TAMBA”

 

The Lullaby Trust –http://www.lullabytrust.org.uk/

Telephone : 08088026868

Provides specialist support for bereaved families and anyone affected by a sudden infant death

 

Scottish Care and Information on Miscarriage – www.miscarriagesupport.org.uk
We offer a specialised counselling service for: Miscarriage, Stillbirth, Neonatal death, and related issues
0141 552 5070
miscarriagescotland@hotmail.com

 

Child Funeral Charity – www.childfuneralcharity.org.uk 

Charity providing financial support for the costs of child and baby funerals, up to the age of 16, Child Funeral Charity assists families in England and Wales who have to arrange a funeral for a baby or child under 16
01480 276088
enquiries@childfuneralcharity.org.uk


A Little Piece of Hope 
– http://smellslikeporridge.wix.com/alittlepieceofhope

A small local charity that can help with funeral and headstone payments, as well as funding for travelling on and off the Island for medical treatment

 

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 Stopping Un-Wanted Pregnancy & Baby Related Mail

Baby Mailing Preference Services –  www.mpsonline.org.uk/bmpsr

“The Baby Mailing Preference Service is here to help reduce the number of baby-related mailings you receive”

 

The Bereavement Register – https://www.thebereavementregister.org.uk/

“If someone you know has died, we can reduce the amount of unwanted marketing post being sent to them, stopping painful daily reminders.

By registering with our free service, the names and addresses of the deceased are removed from mailing lists, stopping most advertising mail within as little as six weeks”

 

 

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Local Charities and Support – Counselling

 

Relate – http://www.relate.org.uk

Services offered – Relationship Counselling, Family Counselling, Children, and Young People’s Counselling

Phone – (01624) 623 902    Email – relate@mcb.net

 

Cruse Bereavement – Isle of Man

Telephone: (01624) 668191      Mon-Fri 0900 – 1330 Email: iomcruse@manx.net

Run by trained volunteers. They also offer one to one support for children and young people, an annual residential weekend and regular social activities for bereaved children and young people. This is ideal for siblings who have experienced loss

 

Samaritans – Isle of Man and UK

Telephone: (01624) 663399 or 08457 909090

24 hours a day, 7 days a week

This is a listening service. They cannot give counselling, but help you by talking through your grief and emotions. This is done in an anonymous way, which leaves you open to saying exactly what you feel without worrying about who you are saying it to

 

Victim Support – http://www.victimsupport.im/

Telephone ( 01624) 679950

Victim Support is an Isle of Man charity, which offers free and confidential help to victims and witnesses of crime, their family, and friends

 

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Local Charities and Support – Services and Support

 

Young Person’s Support Workerwww.hospice.org.im/young-persons-support-worker

The Young people’s Support Service provides psychological and bereavement support to those under 21 years of age, be they patients, siblings of patients or a relation to an adult Hospice patient. The team is led by Lynsey Christian.

 

Wish Upon a Dream – http://www.wishuponadream.co.uk/

Granting of the first wish and its primary role is to grant wishes for sick and terminally ill children living on the island

 

Manx Association for the Welfare of Children in Hospital

Contact Margaret 823114 / Jenny 822534 / Rosemary 814421

“Established a tradition of combining a campaign for improved hospital facilities, attitudes for improved facilities, attitudes and practices with practical help for parents so that no sick chid need be without support of a parent, day or night”

 

Organ Donation, Isle of Man – https://www.facebook.com/OrganDonationIsleOfMan

Raising awareness of organ donation on the Isle of Man. Also, a Memorial Garden has been created at Nobles Hospital

 

Friends of Robert Owen House – www.robertowenhouse.org

Contact: Brian Whitehead (01624) 622314

Provides overnight accommodation for a family member of a patient undergoing heart and lung surgery at Broadgreen Hospital, Liverpool

 

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Local Charities and Support – Illnesses / Conditions / Support

 

Anthony Nolan – Isle of Man – www.anthonynoloan.org

Contact: Ivan Batty (01624) 852486

Fundraising for, and supporting patients needing bone marrow transplants

 

Breathe Easy Isle of Man – www.blf.org.uk/breatheeasy

Contact: Viv Osland (01624) 855008

Advice and support for those people who suffer from any breathing difficulties

 

British Heart Foundation Isle of Man

Contact: Mr C T Sentence (01624) 869107

Fundraising to provide equipment and research for Nobles Hospital

 

Naseem’s Manx Brain Tumour Charity – http://www.naseemsmanxbraintumourcharity.co.uk/

“Our aim is to support Island residents who are suffering with a brain tumour by way of giving them financial support and providing the latest information about brain tumours”

 

Craig’s Heartstrong Foundation – http://craigsheartstrongfoundation.co.uk/

Providing equipment and screening for 14 – 35 year olds

 

Manx Muscular Dystrophy Branch

Contact: Martin Cannell (01624) 861716

Support for clients and local families who have muscular dystrophy

 

Bridge the Gap – bridgethegap.im

It is acknowledged that the GAP between paediatric and adult care is too great a step for many young people, especially those with complex, chronic and life threatening medical conditions. Bridge the Gap aims to Bridge ‘THAT’ Gap by improving facilities and support for these young people

 

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Local Mental Health Services

Crisis Response and Home Treatment Team – https://www.gov.im/categories/caring-and-support/mental-health-service/crisis-response-and-home-treatment-team/

Telephone: +44 1624 642860

24 hours’ service, 365 days per year

The Crisis Response and Home Treatment Team (‘CRHTT’) provides an Island wide accessible assessment and crisis response service for people who are experiencing significant deterioration in their mental health and/or an increase in their psychological distress which requires an urgent response to facilitate a resolution of crisis

 

Community Mental Health Service for Adults – https://www.gov.im/categories/caring-and-support/mental-health-service/community-mental-health-service-for-adults/

Telephone: +44 1624 686313

The Community Mental Health Service for Adults (CMHSA) provides a specialist mental health service and is based at the Community Health Centre, Westmoreland Road, Douglas. It is an island-wide service and people can be seen in their own home

 

Services Users’ Network – www.manxsun.im

Telephone 616188

“To contribute to the continued development of contemporary, recovery focused mental health services on the Isle of Man. And to raise awareness and challenge the stigma associated with mental illness”

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Specific Conditions and Support Agencies UK and Beyond


www.childhoodberevmentnetwork.org.uk – National, multi-professional federation of organisations and individuals working with bereaved children and young people

www.suddendeath.org Sudden is a global charitable initiative by Brake, the road safety charity, sharing best practice, research and resources among professionals and carers who work with suddenly bereaved people. Through this, we aim to help ease the suffering of people bereaved by any kind of sudden death.

www.roalddahl.com/charity – Roald Dahl’s Marvellous Children’s Charity helps to make life better for seriously ill children in the UK.

www.youngminds.org.uk – The UK’s leading charity committed to improving the wellbeing and mental health of children and young people

www.soft.org.uk – Soft are a support organisation for Trisomy 18 & 13 in the UK

www.trisomy18.org – This is the main site for support & research about Trisomy 18 and is worldwide

www.everylifecounts.ie – A place where parents can share their memories, their stories, their love, and their pain; where their children are remembered and cherished; and where we acknowledge that every life counts

www.tcf.org.uk  – This is the website for compassionate friends who are based in the UK to help bereaved parents and their families after a child dies

www.counselling-directory.org.uk – Counselling Directory is a confidential service that encourages those in distress to seek help. The directory contains information on many different types of distress, as well as articles, news, and events. To ensure the professionalism of our website, all counsellors have provided us with qualifications and insurance cover or proof of membership with a professional body

www.thehenryallentrust.org.uk – The Henry Allen Trust are a support organisation for children with cancer, providing grants & treats

http://www.cerebralpalsysymptoms.com/ – Their goal is to raise awareness globally for cerebral palsy and other birth injuries

www.c-r-y.org.uk (Cardiac Risk in the Young) –  Support and counselling to families where there has been a sudden cardiac death

www.coronerscourtsupportservice.org.uk – This service offers information about the coroner’s court, the inquest itself, as well as offering practical and emotional support for those who go through an inquest

www.childrenofjannah.com – Providing practical, emotional, and spiritual support to Muslim parents after the death of a child

http://www.brake.org.uk – Brake is the national road safety charity, and can provide free, confidential support

Telephone: 08088000407 10am – 4pm Mon-Fri

https://www.cerebralpalsyguidance.com/ – In addition to medical information, Cerebral Palsy Guidance extensively covers lifestyle topics, including bullying, schooling/education, counseling, sports and more.

www.daddyswithangels.org – Support and advice for male family members following the loss of a child

www.jensontwinklestars.co.uk – Helps promote and protect good health in the North West of England. Supporting children and families who have been affected by bereavement

 

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Support for Other Family Members

 

The Grandparents Association – www.grandparents-association.org.uk

Compassion and understanding for bereaved grandparents

Winston’s Wish – http://www.winstonswish.org.uk/

“We offer practical support and guidance to bereaved children, their families and professionals”

SAMM – http://www.samm.org.uk

Support after Murder and Manslaughter support those who have been bereaved because of murder or manslaughter, through a telephone helpline, information, and other activities, including local groups.

Inquest – http://www.inquest.org.uk

provides help and advice for those facing an inquest. Bereaved people can obtain a free information pack, including the Inquest Handbook

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Memorials 

Much Loved – Online Memorial http://www.muchloved.com/g_home.aspx

This free tribute service from the charity Much-loved helps you to remember and commemorate your loved one in a very special way

For suggest reading, resources and literature, also visit Books and Resources

Page updated 12/5/2017

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Artwork kindly donated by Janice Farnan Photography

© 2015 - 2016 Tabitha’s Trust
All Rights Reserved
Isle of Man Registered Charity No.1134.